I wish I always had good news to share, but that's not the case.
I met David in the NICU this afternoon. He had spent the morning in the cemetery with the Hevra Kadisha, figuring out where Micha was buried. I had an appt this morning - so we met at the NICU at about 1pm.
Asaf is still having serious issues with his kidneys. A tiny bit more urine this morning, but not nearly enough. The doctor sat down with us to explain what was going on. The biggest problem with his kidneys not functioning is that he can't balance his electrolytes. His heart rate has slowed down, which they think is because of the electrolyte imbalance (he is having an u/s on his heart later today to make sure there isn't inherently wrong and that this is just a side effect of the renal failure). The doctors are trying every medication they can to encourage his kidneys to work and to balance his electrolytes - but there is a limit to how much they can do and how long we can wait for his kidneys to start functioning again. His kidney u/s showed that he has both kidneys and a bladder, all of which look normal and have normal blood flow. So they don't know why they aren't working.
The doctors are doing everything they can, but he can't live without working kidneys. So hopefully his kidneys kick back on in the next few hours/days.
Have they put him on TPN? Here they put all of the preemies in the NICU on it, to keep the balance of electrolytes and anything else you could possibly imagine. Marlo was on it for for a while, until they were able to get her to full feeds...that and lipids. Sometimes the bumps are more than the smooth patches. Hang in there. Praying for you all.
ReplyDeleteYou are doing GREAT Asaf! We know you are such a strong little boy with lots of fight in ya! Just keep fighting and try to pee a little for Mommy and Daddy! We think of you everyday and pray for you as well!
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